I was supposed to go on a field trip today with the lower school. We were headed to a bilingual theater performance in Washington, DC. After we returned, I was going to broadcast the dvd of my 4th graders' news program, which they had been working on over the past couple of weeks. I burned the dvd yesterday right before I left school. This morning, before going on the field trip, I tested out the dvd, and it had a problem. The sound wasn't tracking with the movements. So I had to re-save it from windows movie maker in a different format, and reburn the dvd. All of which was going to take more time than the 20 minutes I had before the busses left on the field trip.
My boss said it was okay, there were enough teachers on the trip, just go ahead and work on the broadcast. So I got the problem fixed, and had just finished burning the last of the dvds to give to the kids when my cell phone rang.
It was Daniel's school nurse, calling to let me know that he had just lost his lunch and had terrible stomach pains.
If I had gone on the field trip, I wouldn't have been able to rush out of school to go get Daniel. I would have been stuck downtown, waiting for the school bus to take me back. Frustrated as I was with the dvd this morning, I was so happy that it kept me close to my car!
Daniel thought he was glutened somehow, because he threw up right after eating lunch. But everything in his lunch was packed by me, and it was leftovers of stuff that he had before. Baked beans and rice. Gluten free corn chips. A kiwi. A choco-loco bar (GF). He said he started feeling really sick when he was eating the kiwi, and that he didn't want kiwis in his lunch anymore.
I wondered if he was suddenly allergic to kiwi. Or if there was gluten on the table, and it got on his hands, and in his mouth when he ate the kiwi. He said that he and his friends were throwing around some Easter candy. Sometimes candy has gluten on it to keep it from sticking. Maybe that was the case. Anyway, we can't figure out where the gluten came from, if it was gluten. It could have been a stomach bug. After going low, having sugar, rebounding high, and taking pepto bismol, he's on the mend now.
He can make up that major test that he missed tomorrow.
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Showing posts with label gluten. Show all posts
Showing posts with label gluten. Show all posts
Thursday, April 16, 2009
Thursday, March 19, 2009
What a Pain!
Daniel told me that he was glutened at dinner, and I said, WHAT? We had leftovers for dinner. Everything he ate, I made from scratch.
Except.
He grabbed a couple of mini milky way midnights for dessert.
When I go to the grocery store, I read every freakin' label. Even things I've gotten before, because sometimes companies change their ingredients just for fun. I read the ingredients of Milky Way Midnights: Semisweet chocolate (sugar, chocolate processed with alkali, cocoa butter, milkfat, soy lecithin, natural and artificial flavors), corn syrup, sugar, hydrogenated palm kernal oil and/or palm oil, skim milk, less than 2% milkfat, lactose, salt, egg whites, natural and artificial flavor. The allergy info says that it might contain peanuts.
There's no ingredient listed that is a gluten problem. So I bought the package. When Daniel complained of stomach pain tonight, I checked online to see if anyone else had any problems with these candies. It seems that regular milky way bars contain both wheat and barley malt, which make them a big NO NO for my kid. But the minis don't have any wheat or gluten ingredients listed. Other people asked what the deal was, because it's confusing!
Well, let me tell you -- if you are celiac, don't eat them! Trust Daniel's stomach and stay away from the pain.
And now I'm just hoping that whatever amount of gluten that he had was so small that he will be able to get through the evening without losing his dinner!
Except.
He grabbed a couple of mini milky way midnights for dessert.
When I go to the grocery store, I read every freakin' label. Even things I've gotten before, because sometimes companies change their ingredients just for fun. I read the ingredients of Milky Way Midnights: Semisweet chocolate (sugar, chocolate processed with alkali, cocoa butter, milkfat, soy lecithin, natural and artificial flavors), corn syrup, sugar, hydrogenated palm kernal oil and/or palm oil, skim milk, less than 2% milkfat, lactose, salt, egg whites, natural and artificial flavor. The allergy info says that it might contain peanuts.
There's no ingredient listed that is a gluten problem. So I bought the package. When Daniel complained of stomach pain tonight, I checked online to see if anyone else had any problems with these candies. It seems that regular milky way bars contain both wheat and barley malt, which make them a big NO NO for my kid. But the minis don't have any wheat or gluten ingredients listed. Other people asked what the deal was, because it's confusing!
Well, let me tell you -- if you are celiac, don't eat them! Trust Daniel's stomach and stay away from the pain.
And now I'm just hoping that whatever amount of gluten that he had was so small that he will be able to get through the evening without losing his dinner!
Wednesday, May 28, 2008
Clarification
Update:
Latest info from my celiac group:
The Levemir Flex pen *is* gluten free; however,
the Levemir 10 ml bottle IS NOT gluten free because of the mannitol
preservative.
70/30 10 ml bottle IS NOT gluten free because of the mannitol
preservative.
Can we get the gluten out of the preservative?
Friday, May 23, 2008
Levemir & Gluten
I subscribe to a message group, celiac@childrenwithdiabetes.com, and I'm so glad I do! I found out today that Levemir has gluten in it.
I had a discussion with out endo just last week about perhaps switching Daniel to Levemir from Lantus because of his high evening numbers. I don't even want to think about what a mess that would have been.
I'm surprised & concerned that there isn't a red flag on all diabetic celiac patient files that says NO LEVEMIR! GLUTEN!!
Why the hell do you need gluten in insulin, anyway?
I had a discussion with out endo just last week about perhaps switching Daniel to Levemir from Lantus because of his high evening numbers. I don't even want to think about what a mess that would have been.
I'm surprised & concerned that there isn't a red flag on all diabetic celiac patient files that says NO LEVEMIR! GLUTEN!!
Why the hell do you need gluten in insulin, anyway?
Saturday, March 29, 2008
It's Okay...
Life is never dull, is it? The damned celiac causes such a nasty reaction when Daniel is glutened. I kept telling Matt to get Daniel to sip some soda, and Daniel kept saying that his stomach hurt too much to take a sip. I finally told him to just take a swig and hold it in his mouth for a minute. Let the sugar cross the membranes -- it would help keep his blood sugar from dropping precariously low. That, plus a pixie stick, kept him out of the hospital last night.
The worst was that Daniel felt so damned guilty about this. He asked the food vendor about the lamb he ordered, but didn't think to ask about the rice. And even though what I think of as *real* rice pilaf does not have pasta in it, the rice he ordered must have had it. They put in pasta that looks like pine nuts.
I told him that it is certainly a lesson learned, and I'm sorry that it was such a tough lesson. But that he has to remember that 95% of the people he asks about food will know nothing about gluten. Or they may think, "yeah, I know someone who can't eat bread." But they won't think about pasta, or soy sauce, or barley malt, or some of the other things that can cause a reaction. So Daniel has to be on top of all this information, or just go to a place that advertises gluten-free food.
It sucks, and it's more than he should have to deal with. But the good news is that he was able to get some sleep after midnight, and was fine at breakfast. He had a low after breakfast, but a minor one, and moved on. He's with the gang, field-tripping through Boston, having a ball.
The worst was that Daniel felt so damned guilty about this. He asked the food vendor about the lamb he ordered, but didn't think to ask about the rice. And even though what I think of as *real* rice pilaf does not have pasta in it, the rice he ordered must have had it. They put in pasta that looks like pine nuts.
I told him that it is certainly a lesson learned, and I'm sorry that it was such a tough lesson. But that he has to remember that 95% of the people he asks about food will know nothing about gluten. Or they may think, "yeah, I know someone who can't eat bread." But they won't think about pasta, or soy sauce, or barley malt, or some of the other things that can cause a reaction. So Daniel has to be on top of all this information, or just go to a place that advertises gluten-free food.
It sucks, and it's more than he should have to deal with. But the good news is that he was able to get some sleep after midnight, and was fine at breakfast. He had a low after breakfast, but a minor one, and moved on. He's with the gang, field-tripping through Boston, having a ball.
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